I had an unexpected cystic fibrosis diagnosis at 31 and later learned that both of my children had CFTR-related disorder. What carried us through was individualized care and the unwavering support of ...

I was born in Germany, and when I was 6 months old, my mother flew me to Washington, D.C. where I was diagnosed with cystic fibrosis. Growing up, I went to school just like any other student, but of ...

Help support Cystic Fibrosis Foundation today! Cystic Fibrosis Foundation is currently addressing a matter that temporarily affects our ability to accept payments from California residents, related to ...

mRNA therapy would deliver a new, correct copy of CFTR mRNA to cells, allowing them to produce healthy CFTR protein. This treatment would not affect a person’s DNA or CFTR mutations. mRNA therapy is ...

The additional funding will support a Phase 2 clinical trial for an inhaled antisense oligonucleotide drug for people with cystic fibrosis who have the splicing mutation 3849+10Kb C-to-T. BETHESDA, Md ...

Nosis Bio, an inaugural winner of the Foundation’s Golden Ticket Competition, receives funding to further explore design of novel ligands, which are specialized molecules that could help more precise ...

Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...

The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...

The U.S. Food and Drug Administration has approved the use of ivacaftor (Kalydeco®) for children as young as 6 months. The U.S. Food and Drug Administration (FDA) has approved the use of ivacaftor ...

Katherine was diagnosed with CF as a baby. She has an older brother and had a younger sister who sadly lost her battle with CF in 2010. Katherine received a lung transplant in 2010 at age 18 and ...

Jeff was diagnosed with cystic fibrosis at 18 months. He credits his health to his wonderfully supportive family and friends and outstanding medical team. Jeff received a B.A. from Tufts University, J ...